ALD awareness and support video

Video from Hunter’s Hope Foundation about Jimmy, a healthy young boy until diagnosed with ALD

Wonderful video documentary from the mother of Zachary Barron.

A tribute to Zachary Barron’s family. This was Zachary’s last birthday. He passed away on April 22, 2002 from complications of Adrenoleukodystrophy.

Ariana talks about Nicolas and X-linked Adrenoleukodystrophy, or X-ALD at St. Jeromes

A disease that can cause death after the mother passes the trait that enables the function of the brain.

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Adrenoleukodystrophy is an x-linked genetic disorder that affects the adrenal glands and the growth of myelin in the brain and spinal cord. This causes fatty acids build up in the nervous system, and adrenal glands.Many individuals with this disorder develop neurological symptoms, and/or abnormal adrenal function.As the disease progresses, further signs of damage to the white matter of the brain appear; signs may include changes in muscle tone and stiffness, swallowing difficulties,and/or comma.