Video by News Broadcast Network, featured by Newsinfusion about Shire‘s announcement of FDA Approval for a Type 1 Gaucher Disease treatment.
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Latest Story
Gaucher-Shire gets FDA Approval
Gaucher-PSOD
Video by the Philippine Society for Orphan Disorders promoting gaucher and other rare genetic disorders.
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Gaucher-Ernest Beutler
Video from the American Society of Hematology of Dr. Ernest Beutler being honored the Wallace H. Coulter Award for Lifetime Achievement in Hematology at the ASH meeting.
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AS-Christopher
Brief video documentary of a boy named Christopher who is living with AS.
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AS-Colton Hunt
Video documentary Colton’s Angelman Syndrome Foundation walk a thon.
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AS-Callum
Video documentary about a boy named Callum who is living with AS.
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AS-Charley Clark
Video about a child named Charley Clark who was born with Angelman Syndrome.
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Fragile X-Floor Speech
Congressman Gregg Harper shares his experiences with Fragile X with the House of Representatives on Fragile X Advocacy Day.
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Fragile X-Fragile X Advocacy Day 2010
Video by David Salomon from the Fragile X Advocacy Day 2010 in Washington DC.
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Fragile X-Fragile X Syndrome Families
Video from the National Fragile X Foundation of families living with Fragile X Syndrome.
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